Children's Healthcare Center Resource Links

American Academy of Pediatrics

AAP is the national resource for information on the physical, emotional and social health of children and youth.

 

BraveKids.org

This is a national on-line resource center for children with disabilities or chronic life threatening illnesses that provides over 11,000 resources, medical information and emotional support for children with special needs such as autism, cancer, cerebral palsy, ADD & many more.  The web site is available in English, Spanish, Chinese, Korean and Russian and provides links to Chicago area resources.

 

Chicago Parent

Chicago Parent is a magazine and web site with articles, resource links, and activity suggestions for all families with children.  Since 2008 they have published a magazine dedicated to the interests of parents of children with special needs: Chicago Special Parent.

 

Chicago Public Schools

At this link one can find a listing of CPS Schools with Special Education Curriculum.

 

Child and Family Connections

Child and Family Connections is part of the state-wide Illinois system to assist in obtaining quick responses to early intervention referrals of children under three.  The web site includes early intervention information, county contacts, and first year developmental milestones.

 

Children with Special Needs

Information and resources can found at this website run by parents for parents of children with special needs.

 

Cri du Chat Support Group

This is an on-line family support group for children with Cri du Chat syndrome.

 

Division of Specialized Care for Children (DSCC)

DSCC is the agency which provides care coordination for Illinois families and children with special health care needs. Resource links are available at this site.

 

Illinois Center for Rehabilitation and Education (ICRE-R)

ICRE-R is a 24/7 residential educational program designed to help youth develop a vision for the future, learn and experience life-long skills to accomplish the vision, and be actively involved in the planning and attainment of the goals.

 

Illinois Department of Human Services (IDHS)

IDHS provides programs and services to help Illinois families meet basic needs.

 

Internet Resources for Special Children

As indicated by the site, this is an attempt to bring together a listing of internet resources for medical professionals, educators and families who interact with those who have disABILITIES.

 

March of Dimes

Dedicated to helping Moms learn to care for themselves in order to deliver healthy babies, the March of Dimes also provides support to families when issues arise.

 

Muscular Dystrophy Association (MDA)

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.

 

National Center for Medical Home Implementation (from the American Academy of Pediatrics) The National Center for Medical Home Implementation (NCMHI) is a cooperative agreement between the Maternal and Child Health Bureau (MCHB) and the American Academy of Pediatrics (AAP).  The mission of the NCMHI is to work in cooperation with federal agencies, particularly the MCHB, and other partners and stakeholders to ensure that all children and youth, including children with special needs, have access to a medical home.

 

National Dissemination Center for Children with Disabilities

This organization serves the nation as a central source of information on disabilities in infants, toddlers, children, and youth. One can also find easy-to-read information on IDEA, the Individual with Disabilities Education Act , which authorizes early intervention services and special education.

 

Neurofibromatosis Foundation

This is the national non-profit network serving families of those affected with neurofibromatosis.

 

Pathways Awareness Foundation

Pathways is focused on the value of therapy for children experiencing early sensory, motor or communication delays. The web site provides developmental milestone information, frequently asked questions and early intervention links.  

 

Type 1 Diabetes

The JDRF (Juvenile Diabetes Research Foundation International) web site offers support as well as research results on Type 1 Diabetes.

 

United Cerebral Palsy (UCP)

UCP educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.   This site serves as a gateway to all state and local chapters.